Thursday, June 14, 2018

JOHN THE MENTOR (Nursing Home Life part 3)

There was food for supper in our kitchenette fridge, but we opted to have supper in the dining room on our first night at Laurier House. Principle had triumphed over preference. In principle, it was best to eat in the dining room because Laurier House is a community as well as a nursing home. David and I have always been community people. In every new place we’ve moved to during 44 years of marriage we have stepped forward to meet the neighbours and join in with local activities. So it made sense to eat in the dining room, even though we had a fridge with food in it. My preference would have been the kitchenette. In principle, we had to pay rent to live at Laurier House, David for long-term care, me as his companion. Food was included in the rent. Why pay again for food you have already paid for? My preference was to buy our own food and eat it in our suite. In principle, we had moved to Laurier House so that there would be a team of people to join me in taking care of David as Multiple System Atrophy steadily progressed. David gave a firm indication that he wanted to act on principle. So we chose it over preference, even though I didn’t want to go there. I had never imagined a nursing home as a place where I would want to live, or a care centre dining room as a place where I would want to eat. When sociable people like us move into a community, its character gradually becomes part of them. They take on its projects, its conflicts, its joys, its aspirations and its sorrows. Having moved several times, we were familiar with this process. Perhaps it was this knowledge, more than any other factor, that explained my reluctance to join the community in the dining room “Pretend it’s a restaurant,” I said to myself. “Fat chance,” myself said back. But we went anyway. Feeling as lost as accidental visitors to a foreign land, we accepted the offer when one of the care attendants came to take us to supper. Perhaps a dozen people had arrived before us. The Laurier House dining rooms are furnished in tables for four. Places are pre-assigned so that the staff can set up in advance. “This is John,” said the care attendant as she positioned David’s chair. “This is David and Wendy.” Then she was off to shepherd someone else. Not counting us, John was the sole diner at our table. It appeared that he was already well into his meal when we arrived. Acting on our natural curiosity, we set out to get to know him. Sociable and curious, we hadn’t been there more than a few minutes when we came up against the first obstacle. We couldn’t figure out why John was there and we didn’t know how to find out. When I was a little girl, my mother taught me a thing or two about asking questions. “Never ask people how old they are,” she said. Later, in response to a transgression on my part she added, “Never ask people how much money they have.” Even later, she added: “Never ask visitors when they are planning to leave.” After that, it was mainly up to me to decide what questions to ask. In the case of John, there seemed to be something I had to know, and I swear I heard Mother say: “Don’t ask people why they are living in a care centre. Wait for them to tell you.” Mindful of her warning, I tried my best to be curious and wait at the same time. While I waited, I contemplated. John did not seem to be a staff member. He appeared so much healthier than most of the residents. Maybe he was a companion like me. But that didn’t seem right either. Laurier House is extraordinary among Alberta Health services care facilities because it houses two categories of occupants: residents and companions. Residents qualify for care services from Alberta Health. Most of the Laurier House residents use wheelchairs. A few use walkers. Some rarely or never leave their rooms. David is a resident. Companions--usually spouses of residents--share accommodation with residents. I am a companion. The ratio of residents to companions is about four to one. This, plus the fact that John was unaccompanied, caused me to assume that John would be a resident. But if that was the case, then it was going to be difficult, without asking directly, to figure out why he was there. John was a friendly, take-charge sort, somewhat older than us but seeming just as young. He was the kind of neighbour you’d like to meet on your first day in a community. When it came to getting past the niceties, he was at a distinct advantage. It wasn’t difficult to see that David was using a wheelchair, or to hear that his speech was impaired. There was stiffness in his arms and hands. His head bowed forward a bit. Knowing we had moved in that very day, John launched an easy conversation about the details of our move. Did we both live here? Where had we come from? Were we comfortably settled in our suite? We wanted to respond by showing interest in him, yet beyond a certain point, we didn’t know quite how. All four of his limbs seemed to be intact. He could hear well and see well. He mentioned driving his car to medical appointments. He had lived here a little less than a year. But what was he doing at Laurier House? The mystery was solved when a care attendant stopped by to put a sympathetic hand on John’s shoulder. “I am sorry for your loss,” she said. When she had moved on, John told us that his wife had very recently died. He lived at Laurier as her companion. . This was a possibility I had not considered, nor did I really want to. Here, on our very first day, we sat within touching distance of a man grieving the loss of his wife. She might have sat here with us if we had arrived a week earlier. At that very moment, David and I were grieving the loss of our regular life together. John must have grieved that same loss not so long ago, and now he was dealing with this new grief. Had we already been friends, we would have known how to talk about this, but as strangers our avenues for mutual consolation were harder to find. John was a stalwart man, resolute in his dedication to moving forward. So we did not speak of grief. We talked of other things. Already he was searching for a new place to live. We followed the details of that search. This is what Laurier House companions do when their spouses die. With no resident to support, there is no reason for companions to remain. Three weeks after we arrived, John was gone. For a brief time he was our best friend. He was the first person we lost at Laurier House and we missed him. The loss I felt at John’s departure took me back a few short years to the time when David’s mother was in her mid-nineties, alive and alert. In the previous twenty years her peers had all died. A social type, she immediately developed friendships in the seniors residence where she lived. But her new friends also died. Yet somehow she had continued on a forward journey with resignation and a surprising degree of optimism. Watching her, I had hoped to follow her example—when I was in my mid-nineties. The opportunity to follow her example came much earlier than I expected. I was 63 and David was 64 when we moved to Laurier House. There was already some illness amongst our peers, but most of our friends and relatives were travelling, volunteering, entertaining friends, and living the life we had hoped to have in our sixties. Joining the Laurier House community was going to expose us to loss at a level we had not anticipated. I am grateful for the time John gave to us. He did not leave without a trace. Instead of talking about grief in his last few weeks, he turned his attention toward settling us into our new future. He taught us how to assist a friendly resident who was constantly searching for her room. He taught us that you could probably be served if you showed up for breakfast half an hour earlier than the posted serving time. He taught us that you could take a breakfast tray to your room, or ask a care attendant to get one for you. He taught us that you could ask the dining room for a litre of milk, or a carton of juice. When I consulted him about a problem with our shower, he said that his shower, left to its own devices, seemed most inclined to point at the side wall. That, he explained, was the reason why he usually chose to bathe. These things we would no doubt have figured out eventually, but we were grateful for the lessons. Time is a clearly defined thing. It takes as long as it takes. Only human perception makes a minute seem long or short. As I write this piece I am aware that I have already been at Laurier House longer than John. The time I spend here is the time I have with David, so I cannot wish it shorter. . In the brief time we knew him, John showed us how life would unfold at Laurier House. People would come. They would hide. They would settle in. The staff, getting to know them, would treat them with affection. Then they would go, sometimes sooner, sometimes later. That was the rhythm of the place. We were at the beginning then, looking for a roadmap to guide us on a journey nobody would ever want to sign up for. We were looking for hope. If John--grieving a loss and facing his second major move in less than a year--could smile through it all, treat people with respect and open his heart to disoriented newcomers, then maybe we could too.

Monday, June 11, 2018

LAMBERT THE OCCASIONAL CAT (Nursing Home Life part 2)

David: Lambert came in when you opened the door. Me: Lambert! You shouldn’t be here! How did you get in? Lambert the Cat: It’s like David said. I walked in when you opened the door. Me: (following Lambert through the kitchenette) But I didn’t mean to let you in. I was only putting the breakfast tray out on the cart to be returned to the kitchen. Why didn’t you meow outside the door like you usually do? Lambert: Because that wasn’t working. When you heard me, you wouldn’t open the door. Now I’d like to stop for a chat, but I need to inspect your suite. Me: (following Lambert around the living room) You’re not supposed to be in here, you know. You are Helen’s cat. Lambert: Helen’s cat, you say? I beg to differ. I am a cat of the world. Me: (Following Lambert into my bedroom) Pardon me, but as far as I know, your food bowl is in Helen’s suite. Your water bowl is in Helen’s suite. Your litter box is in Helen’s suite. That, in my reckoning, makes you Helen’s cat. Lambert: Nice bedroom you have here. Looks like it’s also the computer room. Oh and here’s a keyboard. Do you play the piano? Me: (following Lambert into David’s bedroom) Yes, sometimes. But you really shouldn’t be here, you know. Lambert: (sniffing the laundry basket) I beg to differ. The brochure clearly states that small pets are permitted. This is a nice desk. Did you get that hospital bed here, or did you bring it when you came? Me: We brought all the furniture. And I think small pets are supposed to stay in the suites occupied by their owners. Lambert: (observing the bathroom) A narrow interpretation of the policy, I’d say. Now let’s go out to the living room for our post-inspection chat, shall we? Me: What if a nurse or a care attendant comes in and finds you here? Lambert: (rubbing against my legs) They shoo me out of places where I’m not wanted. But they’ll be fine with it after you tell them you are happy to have me here. This appears to be a comfortable and inviting suite. Would you like to pet me? Me: (bending down to pet) I just don’t know if this is a good idea. If I pet you, you’ll want to come back again. Lambert: (launching himself into a rocking chair) you are a good petter. I feel the quality of experience mingling with affection in your touch. Still, I sense a hesitation on your part. I’m wondering where all this reluctance is coming from. Do you, by any chance, have a history of contact with cats? Me: (sinking my fingers into his fur) Yes I have a history with cats. I grew up on a farm. Our barn was a great home for cats. They helped us keep the mice at bay. Every year they had kittens. I played with those cats all the time. But I was a kid then, and those were our cats. I was allowed to play with them. Lambert (purring) And is there more? Me: Well, yes. Mark had a cat named Kitty. Mark and Kitty lived in our house for years. It took a while for Kitty to get to know me, but he eventually recognized my better qualities. If I do say so myself, I am the kind of person who appeals to a discerning cat. Lambert: standing at the door) Of course you are, and I am a discerning cat. Now, shall I make you an offer? Me: An offer? Lambert: Yes, an offer. I’ll meow outside your door whenever I want you to open the door. I’ll permit you to pet me when I’m in your suite. You’ll let me out when I meow at the door. I’ll be your occasional cat. You’ll be my occasional person. Me: And what about Helen? Lambert: Oh don’t worry about that. Helen fusses a bit when I’m out. She worries that I might be a bother to others. She’d probably keep me in if she could. She can’t quite catch up to me with her wheelchair you know. But I always let her pet me when I come home. Did you know that petting an animal can help to lower your blood pressure?

THE HOPE LADY RISES TO THE OCCASION (Nursing Home Life part 1)

I don’t believe I have ever heard anyone say: “I hope to move into a nursing home some day,” or “My life goal is to end up in long-term care.” Small wonder! Long-term care comes with a lot of unwanted baggage. According to Alberta Health services, it “is designed specifically for individuals with complex, unpredictable medical needs who require 24 hour on-site Registered Nurse assessment and/or treatment.” It’s not a way of being that anyone would choose over good health and independence. But there are times when we choose places to live based on how we are, rather than how we would like to be. If we find ourselves living in a place where our needs cannot be adequately met, then it is just possible that we might start hoping to move to long-term care. These days people in the Edmonton area can receive long-term care in several types of facilities. There are traditional type nursing homes with single and double rooms. There are groups of long-term care rooms in facilities that also have apartments and duplexes that house people who need little or no care. There is also Laurier House, the place where we currently live. Laurier House is unique in that it accommodates both long-term care residents and live-in companions. David and I wanted to live together in the future and that is why we chose it. It was the most hopeful choice we could find. For many years THE HOPE LADY Blog was an active blog where I thought and wrote about life from a hopeful perspective. My writing slowed and eventually halted as my life became more and more entangled with the progress of a degenerative neurological disorder known as Multiple System Atrophy (MSA). I have the spouse’s version of MSA. That is to say, David has the disease, and I am inextricably linked to him. MSA is, by its very nature, a hope-sucker. It can suck hope out of your life as fast as you can generate it. Before MSA our hopes for the future had been grand, general and expansive. Once MSA introduced its future plan for David, our hopes became narrow and short-term. We hoped each day to make our life together as good as possible. Beyond that, I was in a constant state of preparation hoping to be ready to face the unwanted changes that lay just over the horizon. I had traded the happiness of being hopeful about the future for the hope of being prepared to take charge. It was a defensive kind of hope, a hope enacted to counter-balance the fear of losing control in the face of chaos. I could deal with it, but I didn’t want to blog about it. It is possible that, if our time here had been shorter, this phase of my life would have gone unrecorded on THE HOPE LADY Blog. But now that David has been receiving care at Laurier House for more than a year, and I have built a life for myself here as his live-in companion, I find myself wanting to write an insider’s HOPE LADY perspective on living in a nursing home. It seems a little bit dangerous because I have so many feelings these days. On the down side, I am not immune to attacks of cabin fever. I am devastatingly sad to be steadily losing David to forces nobody can control. I am regretful that we could not have made a sustainable plan to prevent our having to move here. I am envious of the friends and relatives who, early in retirement, are living the lives we had planned to live. I am easily frustrated when the tasks of daily living prove to be harder and more complicated than they need to be. These feelings, I find, are more suited to expression in private diaries than public blogging. Nobody likes a whiner! That said, our life together here at Laurier House has many features that a HOPE LADY would want to acknowledge and record. There is delight and friendship; kindness and competence; curiosity and humour. It helps to notice these things. It is much easier to live each day to the fullest and look forward to the days just ahead when we find it in ourselves to name the things that bring us joy, and thank the people who generously fall in step beside us to lend a hand and an encouraging word on this journey. So begins a series of vignettes describing aspects of my life as a companion to a loved-one in long-term care. If you are reading this, please know that I don’t expect you to suddenly start hoping you can someday live in a nursing home, any more than I would expect you to hope for a bout of cancer, or a broken leg. But I do want you to know that there are options, and there are things each of us can do to help create spaces where people might find happiness in the face of frailty and disability. By the time we qualify for long-term care, most of us will not be healthy enough to advocate for the conditions that would make us comfortable. So we have to rely on healthy concerned citizens to bring such places into being before we get there. I write this series in gratitude to the imaginative people who envisioned Laurier House for couples like us, and singles who would choose to receive care in a place that is more resemblant of an apartment building than a traditional institution. I write it in appreciation of three shifts of staff who do their best to be both efficient and humane. Finally, I write in the hope that we will make it our business to staff the facilities we have at something above the minimum needed for efficient operation. When we need to live in such facilities in the future, it will be because we can no longer care for ourselves. In that case, we will want to live in places where the staff has both the time and energy to care for us--not in a minimal way--but with a flourish, as if we were rare and precious.

Thursday, May 03, 2018

REMEMBERING PIRATE

A dog named Pirate died in Calgary on April 20 2018. He died a peaceful death with medical assistance. You may have known him by another name and longed for his return. If so, we want you to know that he lived a good life, all things considered. His death will be mourned by many people who encountered him in the course of his life’s journey. One of them is me. Pirate was a lucky dog, lucky in a context of hope, which is to say that a considerable number of bad things happened around him and somehow he managed to move forward with his own special blend of forbearance and enthusiasm. If he had a motto, a code to live by, I believe it would have been: “Seize the day and love the one you’re with.” Pirate was a white dog, a white dog with some brown. According to veterinary estimation, he was born some time in 2003, Part Shih Tzu, part terrier. He was a small, one-eyed curly-tailed creature whose complete life history has thus far been shrouded in mystery. We can trace it with certainty back to an August day in 2005 when Maxine Thompson of Lougheed Alberta noticed him wandering around Main Street, searching for a lover, or a friendly human. We’ll never know which it was, possibly both. He wore a tattered leather collar that bore no identification. His mud-caked hair hung low off his belly and drooped over his face. Maxine, recognizing a probable resemblance to a well-groomed Shih Tzu belonging to my father, asked Dad to take charge of his care. She promised she would find him a home if his owner had not been identified by the time she returned from an impending vacation. Thus my father began a process of bathing and trimming and ratty old collar disposal that eventually revealed a dog much life his own, except for the missing eye and the fully functioning proof of manhood. It also became obvious that, at some previous point, this dog had both learned to love humans and to build good relationships with them. Two weeks passed with no person stepping forward to make a claim. My father’s dog and his new playmate became fast friends. Maxine was still enjoying her vacation. Dad was rapidly taking on the mantle of a two-dog man, a man in serious danger of keeping two dogs when he needed only one. So he decided to give the dog to David and me “You need a dog,” he said. “Here is a free dog. He’s even house-trained.” Dad was right about one thing. He was, in fact, house-trained. Together on separate journeys, we and Pirate were to learn that there is no such thing as a free dog. We welcomed the dog into our Edmonton home with a brief tour that included a visit to the food bowl. Almost immediately new responsibilities began to emerge. The first was to give him a name to which he could answer if he should somehow escape from our unfenced yard. The second job was to build a fence, seeing as how he escaped from our yard at the first opportunity, and every subsequent opportunity, claiming our entire neighbourhood and the adjoining river valley park as his own. The third job was to find a veterinarian who could reduce his sexual longings and possibly his need to wander, vaccinate him against all forms of pestilence and advise on what should be done with the empty eye socket. David suggested that we call him Pirate. It seemed a good fit for a one-eyed wanderer who’d been living rough. Pirate thought so too. It only took him a day to get used to coming when we called him for a treat or a walk. Building a fence took a little longer. With considerable assistance from two sons and a neighbour, David fashioned a smart white picket fence enhancing the front exposure of our colonial-style home. A Caragana hedge provided protection at the side. The vet vaccinated Pirate against multiple threats, then performed four surgeries for which Pirate was not entirely grateful, one to eliminate the lust for fatherhood, one to clear the eye-socket of debris, and two more eye surgeries to clear debris that stubbornly remained. By the time he’d been with us for a month, we estimated the cost of our “free dog” at approximately $3,000, not including food. Nevertheless, Pirate continued to pursue the idea of being a free dog. From the very start, he consistently showed us two things. The first was that he loved us. The second was that he was committed to living a life befitting his new name. He showed his love by welcoming us home joyously whenever we returned from work, allowing us to pet him when he wasn’t busy, promoting our physical and mental health by insisting on daily walks regardless of the weather, and encouraging us to experience generosity by giving him unlimited treats. He established his reputation for piracy by claiming his right to free himself from bondage by any available means. There seemed no end to the methods he used to assert his freedom. In the days before the fence, he simply declined to observe the yard boundary. When we attached him to a chain, he paced up and down the veranda steps until the chain lodged in the cracks between the boards, then insisted that we free him immediately. When we replaced the chain with a rope, he spent ninety peaceful minutes chewing the rope into six-inch lengths, thereby rendering that rope ineligible for further employment. And when the fence was at last established, he dug a hole between the stocks of the tcaragana hedge and had already found some stinking dead thing to role in by the time his skulduggery was discovered. Yet it seemed that Pirate did not want to be free so much as he wanted to believe that he could be free if he chose to be. One night I heard him barking, so I went to the door to call him in. The louder I called, the louder he barked. At last, rushing barefoot into the yard to retrieve him, I found him on the outside of the front gate, demanding to know why it had taken me so long to open the gate so that he could come in for a treat to reward him for coming back instead of making us search for him. “Why didn’t you come back via the route through which you escaped?” I asked, while opening the treat bag. “The escape route only goes one way,” he replied. “Don’t you worry that you’ll be lost and uncared-for like you were when Maxine found you?” I asked. “Don’t you worry that you’ll be hit by a car when you’re wandering the streets?” “No,” he replied. “Why would I worry? I do okay, don’t I?” “You’re counting on luck,” I retorted. Indeed, he was a lucky dog. When we lost him in the park, a neighbour recognized him and brought him back to us. When a cat threatened to scratch out his other eye, he managed to negotiate a peaceful settlement. When I was hit by a car while holding his leash, he avoided being run over. Pirate was a digger. On the days when he wasn’t trying to escape, he dug holes for reasons we could not always understand. The second time he dug a hole in the middle of the lawn, we informed him that he simply had to change—or else. Or else what, we wondered when we saw evidence of the third lawn digging. Faced with Pirate’s reluctance to change his behavior, I e-mailed a letter of inquiry to an expert. “How can we convince our dog to stop digging holes?” The response was prompt and matter-of fact. “Terriers dig,” said the expert. “Get over it. Give him toys to play with, establish places where he is allowed to dig, and treat him so well that he won’t want to escape.” We bought more toys and considered ways to treat him better. “You can dig behind the pink peony,” I told Pirate, while dusting myself off after the first time I fell into the hole he had secretly dug behind the pink peony. “Thank you,” he said, failing to mention the new hole he had already dug behind the white peony. He’d buried a toy back there and apparently needed to dig it up. “You might as well dig behind the red peony too,” I said a few days later. So he did. Then he went back to digging under the hedge. The sons who had built the white picket fence unfurled a role of chicken wire which they installed amongst the stocks of the hedge. Digging under the chicken wire took longer than digging through the hedge alone. We considered this to be a victory. As the expert had told us, terriers dig. He was a dog who never failed to answer when opportunity barked. When a big scary canine would pass by the front gate he would tear across the yard at top speed, furious and threatening things he would do if only that gate weren’t there to protect the interloper. We never had to go home early to let him out because he could control his bodily functions for 12 or 14 hours. But if we returned home after a fifteen minute outing, it would be absolutely necessary that he should go out. He could manage fine in a daytime thunderstorm, but thunder in the night would catapult him trembling into the space between us in our bed, issuing a challenge. “are you the kind of unfeeling people who would force a frightened dog to sleep alone in the rockingchair?” If our mother had died, or our father, or our sister, if we were recovering after cancer surgery, or nursing a broken foot or a broken arm, he would nuzzle us sympatheticly for a few minutes, then invite us to move past the pain by taking him for a walk. Though his digging made us think of him as a terrier, he was only part terrier. Another part of him was Shih Tzu. Shih Tzus are known to be serially loyal, meaning that they attach easily to humans, then reattach to new humans just as easily. Knowing this, and knowing that he had once been known by some other name, I guess there was always some part of me fearing that a previous owner would come forward and claim him. After all, someone had taught him to love humans and to empty his bowels and bladder in appropriate places. This fear was repeatedly tested during more than 3000 walks in the 10 years we spent together. We walked in an off-leash dog park where people were constantly calling their dogs by name. I couldn’t help but wonder what Pirate was called before we named him Pirate. It seemed inevitable that one day, someone would shout; “Here Herbert!” or “Here Rover!” Then Pirate, recalling his past, would run to this person, tail wagging. So it didn’t seem all that surprising when, in the eighth year, a stranger walking toward us in the park said, “Is that Gracey?” I was speechless. “Pardon me?” said David. “Is that gracey?” “No,” said David. “It’s Pirate.” “It looks like Gracey,” said the man. “But maybe it isn’t.” Then he continued on his walk. I wondered if he was on his way to the police station to report a dog theft. “Are you Gracie?” I whispered fearfully to Pirate when we got home. “Please don’t be Gracey.” Pirate didn’t answer. If he was Gracey, he wasn’t letting on. That night I went to bed wondering what would happen if Pirate turned out to be Gracey. I needn’t have worried. He wasn’t Gracey. We were assured of this a few days later when, on another walk in the park, we came face to face with the real Gracey. There she was, a little white dog with brown markings, curly tailed, one-eyed, a mirror image of Pirate. Facing each other their good eyes met and so did their missing eyes. Apparently it’s not all that uncommon for Shih Tzus to be missing an eye. It has to do with the structure of their faces. Pirate may not have lost his eye in a fight as we had originally suspected. It might simply have fallen out. Serially loyal dogs like you better than other people during the time when they live with you. Pirate liked most people well enough, and some especially well. One of his favourites was Wayne, who lived in Calgary and was married to David’s sister Lorna. Wayne liked to take Pirate for walks when he was visiting us. Perhaps every stage of life is a stage of transition. Pirate was around during times of letting go, of giving up beloved patterns and future plans we didn’t even know we had until suddenly they were derailed. But while we agonized over the changes, he went forward, seemingly unflappable. Pirate’s ability to transfer loyalty served him well. His attraction to Wayne proved to be a lucky attachment. David developed disabilities that forced us to move from the colonial home with the smart white picket fence and the reinforced Caragana hedge. What were we to do with Pirate? “Wayne needs a dog to walk with,” said Lorna. “We’ll take Pirate.” Grateful as we were that he had a new home to go to, we couldn’t hide our tears when Wayne and Lorna loaded their van with Pirates toys and moved him to Calgary. I last saw Pirate a couple of years ago, on a brief visit with Lorna and Wayne in Calgary. He greeted me with pleasure, jumped into my lap for a five-minute pet, then ran upstairs to crawl into bed with Wayne. He and Wayne were still together there when I left the next morning. The switch of allegiance was complete. Given that I couldn’t keep him, I had to love him for that. Pirate was with Lorna when he died, having transferred his loyalty to her. He would have stuck with Wayne, but Wayne had become ill. He had moved to a care centre. In the process of dealing with Wayne’s illness, they’d exchanged their home for an unfenced retirement duplex. Unable to build a fence, Lorna developed the habit of walking Pirate several times a day. This is how they lived until a series of seizures rendered him unable to stand without falling. “I’m sorry you had to deal with Pirate during such a difficult time,’ I said to Lorna when she told us that he was gone. “Oh, don’t be sorry,” she replied. “I miss him. I get home from visiting wayne and he isn’t there to greet me.” David and I know how she feels. We miss him too, though in a different way. We miss the petting sessions and the snuggles and the endless toy tugging competitions that Pirate always won. But beyond that, we miss the life we had when Pirate first came to us, a life where the future promised an untapped reservoir of good things and we had the freedom to say: “Sure we’ll take that dog.” If he could give us advice at this point, I feel certain he would say: “Look around you, see what you have, make the most of it and move on when you need to.” This we have tried our best to do. Somewhere out there we suspect there is a person who once lost a friendly little white diggedy dog, a dog with brown patches who dreamed of being free. We don’t know what your life was like, or how you came to lose him. But if you are that person, or any other person who loved Pirate, we are truly sorry for your loss.

Saturday, November 11, 2017

BACON DAY

On Bacon Day in long-term care Murphy nudges his wheelchair speed a notch above permissible Monica summons the breath to whisper: “Crispy!” Minnie shouts: “More bacon!” In a voice she might have used for “Fire!” On Bacon Day in long-term care Norman makes a sandwich with his toast, Nellie tucks a sliver in her purse and asks for just one more, Her empty plate the proof of need. Nigel rouses from beneath the cloud for one uncommon bite. And though I would not choose to be the janitor mopping up the spills, Or the nurse with the needles, Or the ones who wipe the bums, The worst job of all might be For the one who serves the food Compelled to say: “Sorry, no bacon available” On Bacon Day in long-term care.

Thursday, September 08, 2016

ACT OF DEFIANCE

A blossom burst out on the rose bush this morning Lush, and perfect and smelling like a rose A botanical act of defiance Against the shortening of the days That threatens an end to summer.

Monday, September 05, 2016

A NEWER ME

BE BRAVE TONIGHT By Samantha Reynolds http://bentlily.com/2012/03/05/be-brave-tonight/ Courage is not a genetic hand-me-down or a choice you can rely on in the moment it is a muscle if you do not use it it will shrink you will go to be brave one day and find you are floppy and unsure so try on your convictions start with your own echo the words that play in your head quicksand words telling you things like never stand up to yourself stare down the doubt in the pitch-black privacy of your darkest thought be gutsy remember that a shadow carries no weight rescue yourself and you will grow like a plant to sunlight bent towards valor. The old me wouldn’t have pushed a walker along a littered hospital corridor. A hospital corridor, after all, is no place for a blind person pushing a walker. Too many hazards: cleaning carts to the left or right, frail patients creeping silently, nurses checking their iPhones with backs turned, lab carts, blood pressure machines, intravenus poles! Fear of embarrassment, of being singled out as “blind”, of being banned from hallways by hospital authorities. If I ever worked on changing that, it was never a conscious action. But yesterday--when I wheeled David’s walker out into the hall, intending to park it outside his door, to motivate the staff to help him walk to lunch rather than taking the easier path of wheeling him, narrowly missing a silent woman who, not without cause, barked: “Watch where you’re going!”—I was thoroughly surprised to find that the old me had been replaced. The new me said: “I’m sorry. I’m a blind person.” It was true, has always been true, but this time I was only sorry that I had been careless, and I wasn’t a bit embarrassed. The new me simply shrugged when the offended party made a rude reply. And I noticed, later in the day, when I carefully wheeled the walker into the hall, that the same offended party politely said, “I’ll just go around you.”

Sunday, June 26, 2016

GIVING AND RECEIVING

I went to the Internet in search of the answer to a question I’d been pondering: Is it better to give than to receive? Of course I already knew what conventional wisdom would suggest, given the number of people who say: “It is better to give than to receive”, including a lot of people who probably don’t even know they’re paraphrasing the Bible, Acts 20-35. Normally I don’t get too bothered making comparisons between things like giving and receiving, but I seem to have been doing a lot of receiving lately, and it occurred to me to wonder: Am I really making a lot of people happy? Take this past week for example. Amy brought flowers and Anne brought jam and chili sauce. Mike strummed his intoxicating jazz until every nerve in my body was sighing in blissful contentment. John and Grace inconvenienced themselves considerably so that I could go to a party and David could get a ride to a memorial service. Bev carried my groceries and made an extra trip to return things I left in her car. Brother John gave up a morning so we could get a massage. Alamo reorganized his schedule so that we could attend a barbecue. All of these cheerful givers said, “Oh, it was nothing. We were happy to do it.” So you can’t blame me for wondering if they were happier to do it than I was to have it done. I asked Lawrence to give me his opinion on the matter last Thursday, while he waited for his dad to get ready so he could drive us to exercise class. “It’s better to give than to receive,” he declared in a no-nonsense tone. “Are you saying you are happier driving us to exercise class than you would be if I drove you to exercise class?” I asked. “Mother, you are blind and I definitely would not want you to drive me anywhere,” he said. “Besides,” he added, “That saying doesn’t apply to family. You give to family because you give to family.” Not entirely satisfied with this as the definitive last word, I turned to the Internet where thousands, possibly millions of opinions awaited me. I began by ruling out a few contributions. I did not, for example, accept the opinion of those complaining about paying taxes unless they had signed a declaration that they would forego all publicly funded services, including roads and health care. I don’t know why I excluded them, except that they always annoy me. I excluded all sermons written by ministers who were seeking money for their respective churches, which accounted for pretty well all the sermons given on the topic. It seemed disingenuous that they were asking people to make themselves happy by giving when what they wanted was to receive. I excluded all articles that mentioned Christmas, because giving at Christmas is an unavoidable institution as much as a generosity. After all was settled, I had unearthed this conclusion about donor happiness: “The overarching conclusion is that donors feel happiest if they give to a charity via a friend, relative or social connection rather than simply making an anonymous donation to a worthy cause.” Therese J. Borchard http://psychcentral.com/blog/archives/2013/12/22/how-giving-makes-us-happy/ And I got a little lecture on accepting what is offered: “Do not ask people NOT to give you a gift – this is the same as telling them you do not need their help when they offer it – you deprive them of the joy they get from the giving of the gift and shut down the energy flowing between you.” http://psy-chick.net/sacredness-of-giving/ Finally, a comment on asking for help: “he ability to ask for and accept help is a deeply human gesture, a recognition of the truth that no person can manage alone. The giver may appear to be self-sufficient, but we are all parts of an interconnected web, and to receive is to acknowledge this eternal truth about all of us.” Rabbi David Wolpe http://time.com/4353514/receiving/ As for my question about whether it is better to give than to receive, well, the jury is still out.