The Hope Lady writes about life from a hopeful perspective. Wendy Edey shares her experience with hope work, being hopeful, hopeful people, hopeful language and hope symbols. Read about things that turned out better than expected and impossible things that became possible. Read about hoping, coping, and moping in stories about disability, aging, care-giving and child development.
Wednesday, January 29, 2020
HALFWAY THROUGH
“Hope is the ‘Yes!’ to life.” –Ronna Jevne
I’m halfway through the 22 hours of training you have to take if you want to be registered as a volunteer at Pilgrim’s Hospice. They provide services to people who are dying. So far we’ve covered the organization chart, policies and procedures, confidentiality, communication skills, family dynamics, and psychological issues.
“Aren’t you bored?” my friends are asking. “We know how you hate policies and procedures. With your training and experience you could teach communication or family dynamics or psychological issues. Don’t you have better things to do with your time?”
“Actually,” I reply with a half grin, “I love it.” They are surprised. I am twice as surprised.
“What are you learning?” they want to know.
I’d tell them, but the truth is, it’s too early to say. How do you really know what it is that you are learning until you have learned it?
I’ve been wandering for a year now in the wasteland of widowhood and retirement. I’ve spent a considerable amount of time trying to figure out which way to go. In retirement I would have spent more time with my husband. In widowhood I would have returned to work. But what are you meant to do when you’ve been married for a long time and now you’re not? What are you to do when you’ve been working for a long time and now you’re not?
Pondering the problem, I thought of setting a goal. But I’ve never been much of a goal-setter. As a compromise, I settled for a guiding principle I would try to follow: Just say “Yes!”
My friend Jennifer invited me to join her at a singing event. I said “Yes!” We chose seats for no particular reason and later discovered that the singers in the row ahead were from Canmore. They told us that they sang together in a Threshold Choir. “What on earth is a Threshold Choir?” we asked.
“We sing at the bedsides of people who are dying,” they replied. “It’s an international organization with a lot of local choirs. We love it. If you are interested, you should look on the Internet for the contact information for the Edmonton choir.”
Each Threshold choir has a name. In Edmonton we have the Voices of Compassion Threshold Choir. The representative I contacted was both friendly and guarded. She told me the choir meets weekly to practice as a large group. They send people to the bedside in groups of three. There were questions she wanted me to answer.
“Would you be comfortable at the bedside of a dying person?”
“Yes,” I said. “I’ve been there a few times.”
“Can you sing your own part in a trio without any music in front of you?”
“Yes,” I said. “I have done that.”
“Are you willing to take the volunteer training program at Pilgrim’s Hospice?”
Hmmm! I might have said “Yes!” to that. I don’t exactly remember. If I did, I wasn’t being entirely honest. My real plan was to join the choir, then convince them that I didn’t need the training.
The process of joining took longer than I expected. It is a small choir, formed only two years ago. They have learned a few things along the way. They have learned to be cautious about taking in new members. I had made the call in May, but it was already late in October when they invited me to a practice, and I was busier by then. I probably would have said “No,” had I not been so much in the habit of saying “Yes!”
Now it’s January. After one whole year of wandering in the wasteland of retirement and widowhood I look back in wonder at how time could drag so much and pass so quickly. I had imagined learning to feel at home here. I don’t feel at home. I want to, because it looks like I’ll be here for a while, maybe even forever, learning how to survive, learning how to thrive. To survive means putting up with things you don’t love, like being alone much of the time, and not having a structure that pulls you out of bed on the days when you don’t feel like getting up. To thrive involves learning to recognize love when you feel it—learning the difference between doing things you don’t love and making sacrifices when you love something. It’s a distinction that’s hard for a grieving person to make. You spend a lot of time in an emotional fog. You become accustomed to feeling miserable while doing things you used to love
I do love singing in a Threshold Choir. I love the music, challenging yet simple enough to allow all members to sing at a bedside in three-part harmony without the aid of a book. I love the way I feel after practice—warm and relaxed, the way you might feel after a long warm bath. I loved our Christmas party, when we drank a little wine and gave ourselves fully to the delight of singing rock songs at the top of our lungs until we were hoarse. I love the closeness of it—the way everyone cheers when I arrive at practice later than usual. These people, strangers to me such a short time ago, are cheering because I am there.
I love it so much that I never did ask if I could skip the 22 hours of volunteer training at Pilgrim’s Hospice. I was pretty sure they’d say no because it wouldn’t much matter how smart or experienced I am. I would still have to go through the process.
In 2020 you can’t just march into an institution and ask if they have any dying patients you can sing to. Somebody has to recognize an appropriate situation and invite you in. There are no hoops to jump if you are invited by a family member. But institutions won’t invite you or recommend you to families unless you have been cleared for entry by a criminal check and met their requirements for volunteer training.
So I registered for the training, fully intending to sacrifice 22 hours to the boredom of sitting through presentations of familiar content. The joke’s on me. The content is just what I expected it to be and I am not bored. Here in the unfamiliar wasteland of retirement and widowhood, with more time than I need and emotions I’ve never before experienced, I never know what to expect.
Friday, January 17, 2020
MARSHMALLOWS
In the months following David’s death our son Lawrence would come over to watch TV in my livingroom. There I would occasionally come upon him, sitting in the chairs his father used to occupy, reaching down the sides to retrieve long lost treasures trapped in the upholstery between the arms and the cushions.
“What are you finding?” I’d ask. I would be thinking of spare change and other things that escape from pockets.
“Marshmallows,” he’d reply. And sure enough, he’d come up with a dusty dried-up miniature cylinder that must have been there for a while.
“To the garbage,” I’d say.
“In a minute,” he’d reply. “There are only minis here. I guess when Dad was eating the bigger ones they never fell down that far.”
I’ve always been drawn to the sensuality of marshmallows. It’s not just the sweetness that compels me. I love their shape, their ends, flat enough to stand for themselves, and their round, rollable bodies. A marshmallow is a silent treat. Ten of them could roll off the counter and you’d still be able to hear a pin drop as they hit the floor. They are pliable yet resilient. They know what shape they are supposed to be, and somehow they manage to hold themselves and be pillow-soft at the same time. They are simultaneously smooth and rough. Heat them a bit and they’ll stick your fingers together, strong as Crazy Glue. Run warm water over your fingers and the marshmallow glue will disappear completely. From the perspective of physical properties, a marshmallow is a wondrous thing.
As I began thinking about writing this piece, I was surprised to find that the only thing I really knew about marshmallows was how to eat them. How were they named? How were they made? Fortunately, Wikipedia was there to save the day.
There is a plant, known as the mallow that grows in marshes and damp areas of Europe, Asia and North Africa. The mention of it brings to mind a lush green tree with puffy confections on all the branches. Miniatures would peak out from between the leaves, waiting to grow. But it wasn’t quite that simple. Showing characteristic leadership, the ancient Egyptians ground up the mallow roots, mixed them with other substances, whipped air into the sticky mixture and ate it for medicinal purposes. Much later the French figured out that you could fill a deep tray with corn starch, make holes in it, and pour in the melted marshmallow mixture. When the centre cooled and the starch hardened on the exterior, you could lift out the marshmallows which now had a soft elastic skin. Even later the process was refined to exclude the mallow plant. Modern marshmallows are made by heating corn syrup with sugar and mixing it with dissolved gelatin. The gooey mass is then fed through an extruder. It emerges as a long tube which is subsequently cut into pieces and coated in cornstarch.
Lawrence has never cared much for family parties. Any excuse to miss one would do. So I was taken by surprise when he said we ought to have a party on January 10, the first anniversary of David’s death, all the more proof that grief changes people in ways you’d never predict.
“We need to have marshmallows,” he said, “And Safeway white cake with thick icing.” It sounded like just the sort of party you’d have for our sweet-loving David—just the sort of party you’d have with him. He’d be there for sure, celebrating with family and inhaling the sugar. I could feel the incongruity of such an event, having David absent yet somehow present at the same time. I wondered whether pieces of his favourite cake would mysteriously vanish when we weren’t looking.
Lawrence bought the cake on his own, but he and I did the marshmallow shopping together. It was a task he would not take lightly. I could see that he must have shopped for marshmallows with his dad. He lifted the bags from the shelf and inhaled their sweet aroma. Only the freshest, softest, fluffiest specimens would do. Each marshmallow had to stack independently, never sticking to its neighbours. You could assess this by gently caressing the packages. We came away with two large bags that met all his specifications.
Like Lawrence, I am prone to sentimentality these days, drawn to things that can bring David to life—if only in the imagination. Marshmallows had a double meaning in our family. David was our personal marshmallow. If you asked him to account for an act of kindness or generosity, he’d grin and say: “I’m a marshmallow.” That was the only explanation you’d get.
It was I who first assigned the label to him. I believe I was angry at the time. “You are a marshmallow,” I bellowed, pointing an accusing finger in his direction. Just what it was that caused the outburst I cannot now recall. No doubt he had raised my hackles by caving in sweetly on some point of order with the children. Did he allow somebody to have dessert when I had specifically warned that there would be no dessert until the dinner plate was cleaned? Did he permit someone to go swimming without having cleaned up the bedroom clutter? Whatever it was that he had done, I wanted him to know that I expected a firmer approach.
But in choosing the name I had made a serious miscalculation. Calling him a marshmallow as a shaming device was about as effective as accusing skating ice of being smooth, or blaming diamonds for sparkling. It was a compliment. He loved marshmallows, and if he was one of them, then he had found his tribe. He was proud to be a member.
If he could keep them around the house long enough for baking, David used miniature marshmallows to make Rice Krispies squares. He was so good at it that our daughter Ruth asked him to make a Rice Krispies cake for her wedding. In preparation He shopped for four nested wedding cake pans, 2 pounds of butter, 104 cups of cereal and 8 large bags of fragrant, soft, perfect miniature marshmallows.
In the hot days of summer we were both happy that Ruth was getting married and sad that she would be moving away. David wanted to choose the perfect time for the making of the cake--to ensure the freshness and also leave spare time in case things didn’t go as well as expected. July evenings in Alberta tend to be warm, lit by a brilliant sun that sets some time around 10:00 and leaves a long soft twilight. They lure you outside for walking and barbecuing and gardening. But now and then you get a series of scorching days, followed by an evening where the sky bruises to black, the rain hammers everything and lightning flashes in all four directions to the undulating beat of continuous thunder. It was on such a night, with the windows wide open to let in the fresh cooling breeze, that we set about the task of constructing the huge cake that would send our daughter off to spend a new life in Ontario. With the tempest raging outside and me acting as baker’s helper, we measured and melted marshmallows into puffy sticky clouds. Then we mixed, marvelling at the way things change.
It would never have occurred to us to use Rice Krispies squares as a wedding cake. But the cake we were constructing on this stormy night would boldly grace Ruth’s head table, adorned with a spray of removable flowers. It would be cut generously at the wedding, and served on the spot. The guests would snap it up and go back for seconds. Ruth would proudly say, “My dad made that cake!”
And so it came to pass, that on January 10, 2020, with Ruth and her family living in Ontario, Lawrence, Mark and their loved-ones settled at my dining room table to gorge on over-sized slices of thickly-frosted cake and unlimited quantities of marshmallows. With me occupying the chair at the head where David would have sat, we indulged in marshmallow nostalgia.
Lawrence and Mark recalled the Christmas morning when Mark’s wife Tracey gave them marshmallow guns—yes, guns that shoot marshmallows. Reverting to joyous childhood, they were pulling the triggers and firing marshmallows at one another.
“Those marshmallows go to the garbage,” I said.
As they retrieved the spent ammunition from dusty corners David said, “Are you just going to throw them out? Could you not eat them?”
Eating Marshmallows was one of David’s favourite pastimes. He ate them in the evenings while watching TV. He also ate them when we camped.
We tended to camp simply, in the bush where you find the mosquitos. We didn’t generally have running water, and we never had a good supply of running water hot enough to melt the sticky marshmallowness off our fingers. If we used mosquito repellant the marshmallows would take on the flavour. If we didn’t, then we had to scratch at the bites with sticky fingers. You could cut down on the stickiness by clapping a toasted marshmallow between two cookies and calling it a smore. But a smore was more fattening than a plain roasted marshmallow eaten on its own.
I don’t suppose it had occurred to David that marrying a blind woman would relegate him to a life of roasting marshmallows for two. “Blind people don’t roast marshmallows,” I told him the first time he handed me a roasting stick. Just to prove it, I torched the first three I tried.
“Blow them out when they catch fire,’ he said.
“Blind people don’t see the flames until it’s too late,” I said.
Sighing in resignation, David settled into a pattern. He would eat one marshmallow raw, roast one for me, then roast one for himself. Every so often he’d over-roast one that had been intended for himself, and if he could blow the flame out before it blackened, he’d hand it to me. I never minded a little bit of ash.
You can know a lot about eating marshmallows, and still have more to learn. Sitting at my table, remembering his dad, Lawrence rolled a marshmallow in icing from the Safeway cake. “Icing on a marshmallow?” we exclaimed. “Did David do that?”
“I don’t think so,” said Lawrence. “But it’s good. I think he would have liked it.”
Thursday, January 02, 2020
WRITING THE CHRISTMAS LETTER: 2019
“If you use the bad parts to get to the good parts you’ve done something good.” Elton John
In the last week before Christmas I agonized over the production of a Christmas letter, the kind you add a personal sentence to, and send out to everybody who writes to you, and everybody you expect to get something from, even some people you don’t get anything from and haven’t for years. Back in November, when I carefully contemplated what to write in such a letter, I had decided not to write at all. That plan held up very well until a week before Christmas when people began writing to me.
David and I used to co-produce a Christmas letter back in the days when it could be signed with both our names. I’d make a start some time in November, asking David what he thought we ought to write. He’d mention a few things. I would keep at it, adding and deleting, until I deemed it ready for proof-reading. David would correct the typing and add a thought or two. “That’s fine,” he’d say. “It’s ready to send.”
Without David in the physical world, I believed the writing of my 2019 Christmas letter would be a solitary pursuit. But then, things got complicated. It seemed I was dealing with two versions of myself. There was the me who had decided to write a Christmas letter, and a reluctant woman sitting at my computer, refusing to press the keys.
“How hard can it be to write a Christmas letter?” I said to the reluctant woman. “All you have to do is tell people what you did this year. Start at the beginning. Here. I’ll show you.”
Pushing her aside, I wrote a paragraph. “David died on January 10,” I wrote. “His last few days were difficult because we often couldn’t understand what he wanted to say. But he was determined to be understood. He insisted that I immediately put money for 2019 into his tax free savings account.” He didn’t say, “You will have the money after I die if you put it in while I’m still alive.” But we both knew what he meant. He meant: “Go do it right now.”
I showed my paragraph to the reluctant woman. She was outraged. “You can’t start a Christmas letter that way,” she scolded. So I pushed Delete and started over.
“We were all saddened by David’s death at the beginning of the year,” I wrote.
The reluctant woman stayed my hand. “That’s not entirely true,” she said. The truth is, you weren’t that sad because you thought it was time. You’re a lot sadder now than you were then. One of your favourite memories happened right after he died. Remember how you sat with him, marvelling at how his twisted tortured body had suddenly relaxed, how you lingered with him, holding his hand in absolute peace. That doesn’t sound very sad to me.”
“Should I take it out then?” I asked her.
“Yes,” she said.
“Should I add the part about being peaceful at the end?”
The reluctant woman was—well—reluctant. “Maybe you should skip David altogether and do what other people do. Try describing your grandchildren.”
I pressed Delete and started over. “All five grandchildren make a project of delighting their Granny. Carys is a gymnast with a fondness for unicorns and Lewis can charm you while climbing on top of a table at lightning speed. Ben has learned to read in two languages, Evan builds something with Lego every morning before he goes to school, and Clara spent most of last week pretending to be a baby lion.”
After that, I couldn’t think of another thing to say. So I wandered around the house, pouring cups of coffee, setting them down on various tables and losing track of them before I’d finished.
“Come back here and finish this letter,” nagged the woman who had previously been sitting at my computer. “And don’t push the Delete key. This stuff about your grandchildren has potential. It just needs a little fluffing up. Take a break from that topic and tell them about your travels.”
Feeling a little bit encouraged I wrote that I’d made four trips to Guelph, one to spirit River, one to Jasper and one to Vancouver. I spiced it up with some stories of cruising in French Polynesia. I was conscientious about naming people who had been there for me during my travels. Then I got up, searched the house, and used the microwave to warm the coffee from some of the abandoned cups. “Be happy,” I said to myself.
When I sat down again I deliberately wrote about happy things. I wrote that I was happy to be living in my apartment, happy to be walking in my neighbourhood, to be playing bridge and going to exercise classes and writing for fun with new friends at the Joy of Writing Club. I wrote that I had joined two choirs. I mentioned that I still facilitated hope groups, having not quite completely retired from my work in hope studies. All of this was true, and my confidence grew—until it didn’t.
In its place there came a tsunami of grief that sent me running to my bed where I howled in abject misery.
“What now?” I cried out to the reluctant woman. “Do I have to quit, after all the work I’ve done?”
“I don’t know,” she said. “But don’t push the delete button.”
Instead of continuing the letter, I went back to the computer and read an on-line article in Psychology Today. “You can’t outrun grief,” the author boldly declared.
The reluctant woman considered this. “You are the living proof of that,” she said to me. “Perhaps you should grieve a while. Maybe you’ll be able to finish the letter tomorrow.”
In our forty-five years of marriage David and I read hundreds of Christmas letters. Some were funny. One relative always drew her year in cartoons. Another used the language of a medieval castle. Some were informative—births, marriages and such. Others were boring. Enough said about that.
But there was one letter that chilled us so thoroughly to the bone that we had to turn to each other for comfort. It was a devastating life summary, sent by Cousin Lila. It was cloaked in sadness and despair. Her husband and all his siblings had Alzheimer disease. She wrote details about each of them. She ended the litany by wishing all of us a Merry Christmas.
“Lila is depressed,” I said to David.
He said, “Everything in this letter is probably true, but I wouldn’t send it at Christmas time.”
With this in mind, I turned back to the reluctant woman. “I’m not Cousin Lila,” I said, “and I’m not Susie Sunshine either. I want to write a Christmas letter. Who am I?” anyway?”
“You’re a grumpy, weepy, unpredictable griever living a basically happy life,” she said.
And so it was that I found myself back at the computer the following morning, cleaning up my writing and developing an opening paragraph something I hoped would tell a truth that could reasonably be followed by Merry Christmas wishes.
“It will be a different sort of Christmas this year. No doubt each of us will miss David in our own way, though it has been some time since we had a Christmas that wasn’t influenced by the need to accommodate illness. I would say that grief in my case is less a gradual process of healing over time and more a situation where kamikaze attacks occur when you are doing well in the big picture. I’ve been concentrating on learning new things, having fun and paying it forward as a tribute to the small army of people who have been lighting up my life over the past few years.”
The reluctant woman and I checked it over with a critical eye. It was a longish letter, a little too perky, a little too busy. But the time had come to add personal greetings and send it anyway. Out went the copies, one by one.
After so much dilly-dallying, I had expected to be pleased. Instead, I found myself turning apologetically to the memory of David.
“I’m sorry that letter seems so cheerful,” I said to him. “I failed to mention how broken-hearted I am. They should be told that every fiber of my being still wishes you were here. I wanted to tell them how utterly bereft I get when I think that all my future Christmas letters will be written without you. How could I have edited it all out?”
But the memory of David was remarkably unperturbed. “We couldn’t have sent such a letter,” was his response. “It’s not in our nature. If we couldn’t have said something good, we wouldn’t have said anything at all. But I do think you could have mentioned the tax-free savings money we put in my name back in January. You’ve had that money in savings for a whole year now. That’s $5,500 plus interest you won’t have to pay taxes on. It is an accomplishment worth celebrating.”
“Too late for this Christmas letter,” I said. “That story will have to be written elsewhere.”
Subscribe to:
Posts (Atom)